Hello. I’m the one home tonight for a few hours of sleep and then back to the ICU tomorrow very early morning.
Not much to say. It all feels like a haze although I definitely remember each hour of sitting, waiting, trying to get Charlize to sleep…
Good news is that the medication they’re giving her to relax her heart muscle so it won’t seize up during her tet spells seems to be working. She didn’t have any spells from the time we were admitted in ICU yesterday until 6pm today. And then, at 6, she had one for about 5 minutes. However, no “seizing” up! No cranky wailing, etc. She turned blue, but she was in the best of moods! Laughing, cooing, just happy on her back. So, that’s definitely a good sign.
On the less positive side of the scale, we’re not coming home tomorrow morning. We’ll probably be brought back to the PICU and will stay there until… ? No idea. From our vantage point it looks like we’re sticking around until they reopen the O.R. and having the surgery more than likely on the 28th. Yay for an early surgery… Hissss for staying an extra week and half at the hospital…
Anyhow, no time for replies, just this quick post (both here and on Chantale’s page) to thank you all for your words of support and encouragement. I’ve gotta get some rest now so I can relieve Chantale in the morning. Hopefully she manages a few hours herself tonight…